Every one of us Hashimoto sufferers knows it: You feel very bad again, you do not really get off the ground, you are always tired and the world around you does not understand this disease that nobody wants to understand. The tricky thing about autoimmune diseases is that you do not see them at first glance, that the sufferers are sick and feel bad.
Whether family, friends or life partner ….. Often it is not really easy to explain to others, how you feel with Hashimoto’s thyroiditis and why you are the way you are.
From time to time the internet let me stumble upon a very interesting text, the author of it unfortunately is unknown, but his words do perfectly describe our situation. Without exception, every person I have sent this text suddenly had a much bigger understanding of my situation and understood that Hashimoto’s thyroiditis was not just about gaining weight and getting broken fingernails, but that it is a disease not easy to live with.
For that reason, I do not want to hide this lines from you:
Hello, my name is Hashimoto.
“I am an invisible autoimmune disease that attacks your thyroid and causes a hypofunction.
I am now a part of your life. If you have a hypofunction, I may be the cause, I’m the # 1 reason for it.
I’m so treacherous – I do not always show up in your blood levels, people around you can not see or hear me, but YOUR body can feel me.
I can attack YOU anywhere, just as I like it, I can cause pain and if I’m just in a good mood – I make sure that everything in your body hurts.
Do you remember when you went through life full of energy and had fun ???
Well, I took that energy from you and gave you exhaustion for that. So, now try to have fun !!!
I rob your sleep, and it will give you a fogged brain and lack of concentration.
I can ensure that you want to sleep 7 days a week for 24 hours, or cause insomnia.
I let you tremble internally, make sure that it is too cold or too hot for you, when all the others do not feel that.
I let your hands and feet swell, your face, your eyelids, just everything.
I trigger anxiety and depression or other mental problems.
I let your hair fall out, make it dry and brittle, cause acne, dry skin … for me there is no limit.
Because of me you gain weight, no matter what you eat or how often you train. Thanks to me, the weight will stay. But I can also make sure that you lose too much weight. I’m not picky about that.
Sometimes my friends, the other autoimmune diseases, accompany me, so you have to plague yourself even more.
If you have something planned or you are looking forward to a great day, I can thwart you.
You did not ask me to come to you. I’ve selected you for a variety of reasons:
The virus or viral diseases you’ve had and never really recovered from, or fatalities (stress I like). Maybe I already have been inside your family for some time. Whatever is the reason, I am here and I will stay.
You go to the doctor to get rid of me ??????? What a joke. Try it. You will have to go to many many doctors until you even find one that finds ME …….. and that knows about ME.
You will get prescribed the wrong drugs, painkillers, sleeping pills, stimulants. If you tell them that you have anxiety and depression, you will get antidepressants.
There are so many ways for me to make you feel sick and miserable. The list of symptoms is infinite – this high cholesterol, gallbladder problem, high blood pressure, muscle and joint pain, eye problems, blood sugar levels, heart problems, heart stumbling. That’s probably me. You can not get pregnant or have a miscarriage? I probably was that, too!
Shortness of breath or hunger for breath? Yes, probably me, too. Liver enzymes too high? Yes, probably me, too. Dental and gum problems? I told you, the list is endless. You get massages and they tell you, if you just sleep enough and do sports, it will go away.
You will be told, you should think positively, you will be pricked and stung while drawing blood, but most of all, you will NOT be taken seriously, if you try to tell a myriad of doctors, how debilitating I am and how burnt you feel. You will probably hear from these (unsuspecting) doctors again and again, you should consult a psychiatrist.
Your family, friends and work colleagues will listen to you until they can no longer hear what I am doing to you and how much I am weakening you. Some will say, “Oh, you only have a bad day” They say things like, “if you just get up, move, walk out, and do something, you’ll feel better.”
They will not understand that I take the motor away from you that drives your body, and make sure that you CAN NOT do that.
Some will start talking behind your back, they call you hypochondriac while you slowly lose your dignity 🙁 and try to make them understandable, especially if you are in the middle of a conversation with a “normal” person and suddenly do not know what you were talking about,
Then you’ll hear things like, “Oh, my grandmother had that and she’s fine with her meds,” and you’re desperately trying to explain that I show to each person differently, and only because the drug helps with this grandmother, it does not mean that it will help you either.
They will not understand that this disease affects your body from head to toe, and that each of your cells, your body, and each of your organs, needs the right dose, a lot of TIME and the right medicine,
But even then I will stay !!!
Only other people who carry me inside, too, will feel with you and support you. They are the only ones who can really understand you.
My name is Hashimoto Thyroiditis. “(Author unknown)
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